140621_0052Janick Tremblay

Janick Tremblay is president of the organizing committee. She is affected with Tyrosinemia and received a liver transplant when she was ten years old.


 

140621_0304Gérard Tremblay

Gérard Tremblay is the father of Janick and cofounder of the Quebec parent association (GAETQ). He has been president of the GAETQ for over 25 years. He leads the funding aspect of the Tyrosinemia 2015 Conference.


 

140621_0296Marielle Gravel

Marielle Gravel is the mother of Janick and cofounder of the Quebec parent association (GAETQ). She has been secretary of the GAETQ for over 30 years. She is also the secretary of the organizing committee.


 

photoJean Harvey

Jean Harvey got involved in the GAETQ shortly after his son Samuel was born affected with Tyrosinemia, i.e. close to 18 years ago. His role in the organizing committee is to ensure a link with pharmaceutical companies.


 

140621_0683Guy Parizeault

Guy Parizeault MD, is the pediatrician in charge of Saguenay-Lac-Saint-Jean patients affected with Tyrosinemia. He acts as director of the scientific committee.


 

Sylvie-St-PierreSylvie St-Pierre

Sylvie Saint-Pierre is the mother of a young adult who was born affected with Tyrosinemia and who has received a liver transplant. She has decided to get involved in this organization in order to promote a better knowledge of the disease and facilitate the funding of research.


 

140527_0819Francine Gauthier

Francine Gauthier is the mother of a young adult who was born affected with Tyrosinemia and received a liver transplant. She is also a member of the GAETQ and has been sitting on the board for several years. On this committee, she is responsible for the registration.


 

ANNEVAnne Vigneault

Anne Vigneault is director of the Fondation du Grand défi Pierre Lavoie which supports research on rare hereditary diseases. She is in charge of the poster session that will be held during this conference.

 


 

140621_0111Pauline Lavoie

Pauline Lavoie is the mother of a child who was born affected with Tyrosinemia but did not survive. She has decided to get involved in this committee to be in charge of communications and help promote a better knowledge of the disease. She is very confident that this first international conference will bring a new hope and further improve the quality of life of children affected.


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